The day starts with the house disarmed and unlocked, and it's time for the morning routine of medication before liquids and the challenge of what conversation will start the day. It's almost always the bright and cheery start of:
I woke up. I'm still me, and okay, I'm happy.
It mostly starts each morning at the same time and in the same way. The outside world can complicate things, and today, I'm just going down the honest rabbit hole of all the complications, random or otherwise, as I cannot control complications, even the kind others accuse me of for their gain or reasoning: greed, jealousy, stupidity, or lack of caring. Who the fuck knows the inner workings of another brain and what misfired at that moment to lose all rationality. The outside world has so many opinions about something they don't witness or experience, but they try to master their tangles and neuroscience. The outside world - Even the professionals are in 'practice' for the cause and solution of Alzheimer's and will only offer guidance, not absolutes...
Things have shifted. The pattern is finally visible, and maybe a reset is needed for a new plateau.
Fuck the Others. Take it for when it can help put logic in the illogical. Put rational in the irrational.
Quality of life caregiving is not for the weak-minded.
Take this real-time attribute to the sassy-ass woman who wants to make a difference:
in someone's journey later on,
The toll it takes on the ones who give The Care of ~ when it's needed, no matter what,
When, how, and where.
Wishes will be met with unwavering support and kindness.
Amend it as you see fit for the journey you plan at the beginning of your journey as things shift into uncharted waters - a less complicated way of taking from present and past experiences per sentence.
It's getting more complex to make excuses for the outside world. Promises were easy back then. Stay mobile for as long as you are able. Stay hydrated and eat for as long as you can. Stay verbal and interactive for as long as possible. Knowledge of Hyper Awareness, the skills of an artist like Rembrandt, and the favorite sense now used of the One.
Hyper-aware and highly observant. The senses are strong on tone and tenor of voice: pauses and speed changes in speech, along with background noises. Short-term memory does not equal stupidity. How degrading to your own "Famiglia".
Pensa per un momento, come potresti trattare così male la persona che condivide il tuo sangue, che ti ha dato tutto? Considera i sacrifici che hanno fatto e l'amore che ti hanno dimostrato. Ricorda che sono quelli che sono sempre stati lì per te nella buona e nella cattiva sorte. Quindi, prima di scatenarti o agire impulsivamente, fai un passo indietro e pensa a come ti sentiresti se la situazione fosse cambiata.
She was Catholic to support what she married, not because she wanted to... The famiglia.
This was a hard day, and I'm here for it. Not the goodwill of others.
I'm a bitter pill to swallow for the days or weeks ahead. There are lots of complications in the way life works regularly.
Seriously, so much time intentionally misunderstood.
Trapped in the memory cycle "loop" of Alzheimer's is a haunting experience that many individuals face, where the past becomes a constant companion, replaying memories and emotions on a continuous loop. Each day unfolds like a broken record, with fragments of the past resurfacing in a relentless cycle. The individual finds themselves caught in a web of nostalgia and confusion, as they struggle to distinguish between present reality and the echoes of a bygone era.
Living with Alzheimer's means reliving a memory or a feeling day by day, with each repetition blurring the lines between what is real and what is a figment of the past. This relentless loop can evoke a range of emotions, from nostalgia and comfort to frustration and despair. The person may find solace in familiar recollections, yet also grapple with the loss of agency and control over their own narrative.
As caregivers and loved ones witness this cycle unfold, they are faced with the challenge of providing support and compassion amid such profound disorientation. Each day becomes a delicate balance of honoring the individual's past while gently guiding them through the present moment. It is a journey marked by patience, empathy, and a deep understanding of the complexities of memory and identity.
During this memory loop, there are moments of clarity and connection that shine through like beacons of light in the darkness. These moments remind us of the resilience of the human spirit and the enduring power of love and companionship. While Alzheimer's may trap individuals in a cycle of memories, it is through the bonds of shared experiences and unwavering support that they can find moments of peace and connection amidst the storm.
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