I find the phrase 'tough shit' to be intriguing.
It makes me wonder about its true meaning. Are bowel problems now equated with emotional challenges...? The unwillingness to consider a different perspective should not be linked to gastrointestinal issues. Yet here we are, on a day that has been under discussion for over a week without any gentle understanding from others.
As previously mentioned, surprise visits are not effective.
Why is that?
A surprise visit two weeks ago had negative consequences, leading to the manifestation of the one symptom of Alzheimer's that we have been fortunate enough to keep under control through structure, routine, and consistency.
The plan was established years ago, and yet today, external forces are pushing for their version of what should be, disregarding the reality of the present moment in terms of short-term memory and safety measures.
Wandering.
It's a genuine and frightening symptom. We often hear about missing persons with Alzheimer's, dementia, or other cognitive conditions on the news, causing distress, fear, and confusion - the relentless act of searching.
Searching
.
Looking for someone or something misplaced. A perpetual challenge in memory care.
I'm not here to provide professional advice; do your research and embark on a journey of no return. My purpose is to shed light on the consequences of others unintentionally or perhaps intentionally creating chaos and division.
I'll pose the question again, despite stating in previous posts that I would refrain:
Why? What is the purpose? What is gained?!?
Safety.
Well-being.
Perceived control.
Quality of life.
What is so challenging to comprehend?
The established structure serves a specific purpose. We strive to maintain a secure and healthy environment to enhance the quality of life for as long as necessary.
Why oppose what works for daily life?
Why resist what some individuals are too self-centered to grasp?
Real-life unfolds whether they acknowledge it or not.
The phrase 'tough shit' was used. If I disagree with the deliberate and blatant disregard for what is best for the individual, even though I am tasked with providing the best possible life for as long as I can - why disrupt that? Why go against the measures put in place for the individual's benefit?!?
The malicious attempt to harm by insinuating
'I don't have to, and if you don't like it, tough shit.'
The unfortunate part is that it could have been an enjoyable day for everyone. Instead, ego, misplaced pride, and self-importance take precedence once more.
You are correct in asserting that you are not obligated to do so, but the reality is - neither am I, and the professionals are becoming frustrated with the ongoing challenges seven years post-diagnosis, with current issues more pronounced.
The reasons for others' confusion:
They do not inquire about health matters unless I provide an update.
Why is that? I can only assume there is a lack of interest or concern.
Did they know that anti-nausea medication was administered today to address severe gastrointestinal problems?
Did they know that even after three weeks, we are still administering medication to manage wheezing and coughing? No - no one asks or engages in meaningful discussions.
Instead, they jump to conclusions:
'Tough shit if you don't like it'... how accurate that statement is this afternoon when everything seems challenging. Instead of empathy, kindness, or factual information, there are only brief conversations - not with the individual who experiences these real-time challenges and has no control to prevent them, as it always involves others.
I'll leave this here:
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