The focus is on CONTROL.
Recognizing the caregiver's control.
The perception of control from the perspective of the one receiving care.
Disregarding the caregiver's control diminishes the quality of care provided. These are aspects not typically addressed when one must fulfill the responsibilities of a rational individual with unrealistic expectations, influenced by external parties beyond the confines set by the sole authority determining the administration of control and the optimal long-term outcomes.
Two individuals, born a year apart, are facing different challenges in their lives.
One is dealing with a diagnosed brain illness and various medically investigated challenges that are seen as risky.
The other has received serious medical diagnoses, is aware of the level of difficulty involved, and requires additional treatment and support.
While one has had a caregiver for several years, gradually adapting to a consistent routine and lifestyle, the other has suddenly found themselves in constant care, having to adjust rapidly to a completely different daily routine.
One has carefully planned life goals and strategies for enhancing their quality of life, whereas the other has been improvising until being forced to make decisions they never anticipated.
For years, one has been clear about their strict needs and boundaries, knowing that if necessary, they can enforce them firmly, while the other seems to thrive on chaos as it is the only way to gain attention.
One enjoys manipulating situations with cleverness akin to a powerful figure like Lex Luther, while the other, seeking positivity, may resort to more aggressive means to achieve what is needed for a positive outcome in the end.
Control is an illusion. A myth. Perceived control is simply a delusion. A fable. Negation of control in a tipsy-turvy world, with loss of time and energy, is a twisted game to beat the odds of life.
Let me make my point:
As a human, I have never had control over others.
Not 49.9 years ago and absolutely not now.
I cannot control who will be answered or when on the phone of another player in this saga.
I cannot control who is and who isn’t blocked from another’s device.
Perceived control is that I can and do and have. Fuck that, come live my day in just a 6 hour period and still believe that shit…
I cannot permit uninvited guests.
I cannot dictate whom someone else chooses to meet.
I cannot regulate the messages sent or received on someone else's phone.
Perceived control is that I can and do and have. Fuck that, come live my day in just a 4 hour period and still believe that shit…
I walk a fine line. A line of what's best for the one and how far down the rabbit hole we go for detailed explanations and the manipulation used against the only thing left to communicate with those who refuse to accept the needs of the only one who truly has the most control.
Let's try to clarify the characters:
The One - protagonist
The Caregiver - antagonist to The One
The Others - supporting characters with conflicting roles
There are 3 sets:
Prior to 1974:
The start .
Recollections
Grand finale and epic tale
Post 2019:
Fantasy sequence
From 1974 to 2018
Central stage
It's complex! Need to focus on the overarching plot. Secondary characters take precedence.
The start is divided into two periods:
Pre-1958
Post-1966
The middle is confusing and a locked box in the mind. Formed to shield oneself from the grief and tragedy that's incomprehensible (unless you've experienced similar loss and its devastating aftermath).
The survival. The terror. The incidents that mold and the individuals encountered on the journey who bring both happiness and chaos, love and overwhelming suffering. The decisions made that are later regretted due to the clarity of hindsight.
The happiness and undeniable sorrow, and the battle to persevere and improve the world just because.
The narrative of the beginning holds significance, but the specifics require the underlying implications and context of more recent years.
Is it a book or a movie scene? I've been pigeonholed and assigned my part. I embraced that reality a long time ago. The conclusion might catch us off guard, but let's be real - I can't be shocked by the obvious.
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