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Navigating the Fine Line: Setting Boundaries as a Caregiver in Dazey D Days

A story repeated or a teapot on a hot stove without water. A misremembered set of events from years past or a current challenge so small but feels tragic. The changes are so slow and have no pattern. One minute, the mood is light and cheery, and five minutes later, it's afull meltdown with no end in sight and without a known cause.


The sky is on the floor, and the solid footing is now tenuous. When did the world tilt sideways? Years and years of mild quirks become a daily struggle with no resolve. Wanting to be in control and independent, the battle to maintain normalcy takes so much energy away from mundane daily tasks, and frustration sets in. Pure panic comes in minutes, with no one to see. No one to experience. No one witnessed the heavy burden carried. Living with short-term memory challenges is hard on everyone involved but hardest on the one who needs unwanted help, guidance, and patience. Compromise is the nicest word for bribery, coercing, and my all-time favorite - begging.


Let's chat about compromise.

A compromise is an agreement or a dispute settlement reached by each side making concessions. Concession is something done or agreed to, usually begrudgingly, to reach an agreement or improve a situation. ~ Merriam-Webster.


Compromise is a learned skill. Never to be mastered and ever-changing. To give up one thing that doesn't quite sting as badly as the loss of what is more important. Take the fucking w for this battle: hoping you are ready for the war brewing...

I'm not using the 'a' word this evening. #endalz


The A diagnosis seems to give the impression that there is a fucking cure or, at the very least, a manageable solution.


Let me share a well-known ignored fact; there isn't a cure, no answer. The days drag on with the knowledge of what is to come - think Titanic or the search for survival on a lonely island.

Compromise is the Flair Gun used in a veiled attempt for safety each minute of each day.

"I'll do this if we can agree to think about the possibility of bla bla bla..."(insert whatever is needed at the moment.)

Compromise is a learned skill, and so is patience. Patience must be developed before anything else because you cannot effectively compromise without a significant dose of patience.


Learn:

1. Patience

2. Understanding

3. Boundaries

4. Compromise

5. Compassion


Master

1. Patience

2. Understanding

3. Boundaries

4. Compromise


Compassion, a profound emotion that originates from love, is a complex and multifaceted concept that can be challenging to articulate. It goes beyond mere sympathy or empathy; it involves a deep sense of understanding and connection with others. This journey of compassion is not about exerting control over situations or individuals; instead, it requires navigating through difficult circumstances with grace and wisdom and making decisions that prioritize safety, trust, and the well-being of all involved.





It is essential to acknowledge the sacrifices that come with the practice of compassion. Relationships are often put to the test, sometimes strained or broken, but also have the potential to be strengthened and mended through acts of kindness and understanding. The path of compassion is a continuous one, where the destination may seem distant yet surprisingly close at hand.


The ultimate goal of this journey is to ensure that individuals experience the safest and most peaceful end-of-life journey possible, regardless of its duration. Whether it spans five, ten, or twenty years, the sacrifices made along the way are driven by the purest intentions—to alleviate the burdens carried by others and to provide comfort and support in times of need.








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